Since our last update, we have been referred from our original local team of doctors to a more specialized team down in the Hollywood area. We had our initial appointment with the Maternal Fetal Medicine Specialist and the Pediatric Cardiologist yesterday afternoon and (via ultrasound) they were able to confirm the initial findings. (In fact, just to highlight God’s mercy throughout this whole thing, the specialists were VERY impressed with the ability of the original team of doctors to even discover Tikvah’s condition in the first place because, in their words, “it would have been very easy to miss.”) Also, they were able to double-check all of Tikvah’s other vital parts (i.e. kidneys, brain, etc.) and nothing else appeared to be cause for concern.
Following our ultrasound, the Pediatric Cardiologist sat with us for about a half-hour to fill us in on all that we should expect following Tikvah’s birth. To reiterate, basically, Tikvah will be delivered at Kaiser Permanente hospital in Hollywood. Within 72 hours following her birth, she will be taken across the street to the Children’s Hospital Los Angeles for open-heart surgery to correct the placement of her arteries. (By the way, this is just another point where God has revealed His grace in all of this because CHLA is world-renowned for their advanced care of children’s related illnesses and diseases. We never could have dreamed that we might have access to such highly-trained, highly-skilled physicians and equipment in treating our little girl … God is so good!) She will return to Kaiser Permanente NICU for recovery and is expected to be there for approximately 2 to 4 weeks following the surgery.
Upon discharge from the hospital, she will require specialized care at home and frequent follow-up appointments. However, should she heal and recover well from the surgery, it is expected that she should go on to participate in all of the “normal” activities of life in the months and years that follow.
As of right now, she is doing fine and I can feel her getting bigger every week. She seems to be a strong little girl (just like her older brother, Hezekiah), judging by the kicks and squirms she has been giving me lately, but we rejoice in that knowing God is strengthening her for the physical trial that awaits her as she enters into this world.
Our God has been so good to us throughout all of this. He has lavished us with immeasurable peace and girded us with confident assurance in His character. We have been wrapped in an overwhelming sense of His unwavering love and grace. We have found so much comfort from the unfailing promises in His Word and look expectantly (and “hope”fully) to Him for the outcome and all that He has planned for little Tikvah’s life. We can fully attest to the fact that God truly gives His children the grace to bear-up under the trials that He lovingly orchestrates for them … we are experiencing that right now. 🙂
To God be the glory!